Tomorrow Ezra will start the long term maintenance phase of his chemotherapy. When we first got the leukemia diagnosis it was so hard to envision ourselves getting to this point. Don’t get me wrong, long term maintenance isn’t going to be all rainbows and unicorns.
For the next 2.5 years he will receive chemo every day in the form of a pill, steroids 5 days a month, spinal taps every 12 weeks, and Vincristine once a month. We won’t be up at the clinic nearly as much, but the harsh reality won’t fade, with the daily chemo pill reminder.
Words really can’t express what Ezra has taught me in the last 6 months. He is the bravest person I know, and he is 2. I am honored to be his mother, and I would say I was proud of him, but that wouldn’t do it justice. It is beyond pride. So instead I will leave you with a little video I have made with clips from the last few months.
I apologize, the quality isn’t the best, it was taken with my point and shoot. But you will get the gist of it, and maybe you will see what makes him so special too.
I love you sweet boy, keep kicking cancer’s ass!!!